»

31 October 2008

A Cousin's Halloween!

Ashton LOVES Buzz. Ashton was super excited to be Buzz for Halloween... especially once he had the inflatable wings to display. Ashton LOVES airplanes. Ashton's holiday was complete because he not only was Buzz, but felt like he could fly with those wings. He still wears the wings daily.


Halloween wouldn't have been as great if we didn't have our cousin's to trick-or-treat with! Yes, Ashton is the only boy, but he also LOVES pink princesses and mermaids...especially when their names are Emma and Paige!


19 October 2008

Why so Sick?

Ever since Ashton recovered from his trauma at 4 months old, he has had a rough time with respiratory illnesses. It seems that with each sniffle and cold there is asthma, pending pneumonia, RSV, Bronchitis, or something else involved! Who contracts upper respiratory illnesses in the summer???? Ashton. We are so blessed to have medicines like Albuterol and antibiotics.


Aside from respiratory issues, this October Ashton contracted hand-foot-mouth disease. It sucks. I learned that this disease can be mild to severe, but if you know my son he always seems to get everything full force! After 2 days of no food or water, with extreme pain and irritability, a trip to Primary Children's for some IV fluids and pain medication seemed to do the trick. My advice to mom's in similar circumstances... Ashton did not seem dehydrated, and was even still urinating, but his labs came back that he was. Do not wait if your mommy-instinct tells you to take action. Sometimes administered fluids make all the difference in the world!

30 September 2008

Vegas

This September I decided I needed to use my airline credit and get myself down to Vegas! I hadn't been for a year or so and I missed my sisters (cousins). There weren't any big plans made, just me going down at the last minute to relax, and spend some quality time with my family. The down side was that half of my family was gone that particular week. We were bummed about that, but still managed to have a great time!

Mindie and I were invited by her mom and Jim to tag along to dinner at Cafe Rio and a movie. I really enjoyed spending time, laughing and crying at the movie, with them! We really had a great time despite our inability to focus at the beginning of the movie because of certain "scents"...


Dinner at the Barlow's is always a special treat because Jared really knows his stuff and therefore a mean chef! The chicken marsala was delicious!

The only part of my short trip that was actually caught on camera was when we went out on the strip. This is something that isn't done often when visiting, because for one reason or another we keep ourselves busy and do things mostly outside the strip. My uncle Jamie, and cousin's Jill, Kirk, Mindie and her family, met up at the Bellagio. There is always a themed area there that is decorated differently every month out of the year. There were talking trees with faces, and trees with bodies...
I was a bit slow picking up on it all. It smelled like a spiced harvest through out the entire area and was fun for the kids. It was worth checking out...




Then, down around the corner was a chocolate "factory" that Jill took us to called Jean Philippe Patisserie. Oh my goodness! Check out the chocolate fountain! I was IMPRESSED!...and not because I'm a girl with dark chocolate running through my veins!



Uncle Jamie loves to get us special treats...so Jill and I each picked out one of their desserts to share. I obviously picked out a chocolate cake/truffle piece which was exquisite to even look at let alone taste. While Jill decided on a strawberry-kiwi concoction, that was equally, if not better than, the chocolate fantasy I picked out! Definitely visit there when touring the strip!




I decided I wanted to bring home souvenirs for the kiddos, and thought that the Coca-Cola and M&M factory were the just the place to find some. While at Coca-Cola, everyone got something to drink...root beer floats, coke...but Jill and I decided to try their 7 dollar special...multi-drinks from around the world! We were all over it! We took turns being the first to taste each one, and were pleasantly surprised by some! There were others that I'd rather not remember...including one that tasted like hair spray and another like fingernail polish remover! Those never entered my belly because they were IMMEDIATELY, but with class of course, spat back into the cup. Too much fun!




Thanks Barlow, Bryan, Batt, and Mohler families for always taking care of me and being available for me to come visit! Can't wait to do it again soon! Love you guys!


27 August 2008

Nothing Short of a Miracle

Ashton is 2 years and 8 months old today.
It has been over a year since he was diagnosed with Autism.


This past year has been full of developmental progress in Ashton's world! All those who come in contact with him can see this plain as day. Our previous post was an update on his last appointment we had at the CDC, and also informed of the upcoming appointment with the developmental psychologist, Dr. Natalie Roth, for today...August 27, 2008.

Autism is a spectrum disorder, meaning that it is based on a numeral scale. We all fall on the spectrum, however Autism is highest on the scale. Like other children being monitored for disabilities, Ashton, has been tested by this psychologist twice now using the ADOS exam, Autism Diagnostic Observation Schedule. This process determines where individuals lay on the spectrum. Starting with zero, 0-6 is where we are considered "normal", we all have quirks and differences from one another...and even if we don't feel "normal" at times..., speaking in spectrum terms, we are. Then, there are the numbers 7-11. This is where people are diagnosed as having a "spectrum disorder". Lastly, anything above a 12 on the scale is Autism, the closer to twelve the milder the case. Last year when Ashton was tested, as you may remember, he scored a 13...as having mild Autism. At that time Dr. Roth explained that with Early Intervention and different therapies, progress on the spectrum could be reduced 4 to even 6 numbers on the scale, which would put Ashton as being in the "spectrum disorder" range. Today I report with tear-filled eyes that Ashton has recovered from Autism scoring a 3 today! A three, not 4, 5, or 6 in the normal range, but a 3!

Everything that my son has stood for since even before his time on this earth has been nothing short of a miracle! Who is this kid and what important things is he here to teach us? Hooray! We have worked so hard and Ashton has responded to every resource available with progress! The best thing I heard today was Dr. Roth say that she has only seen maybe 1 other case where there has been this much progress and recovery! I understand that this may not be possible for all Autism cases, but the potential and resources available for working towards recovery is endless!


For the rest of the appointment we discussed how there is a issue with speech. She said that by now there should be more improvement with his speech and language to have it still be considered a "delay", so with how things stand now he would fall into the category of having a disorder. Actually, we met earlier this month with a speech therapist who diagnosed him with a mild to moderate receptive and expressive language disorder, which we are now already in weekly therapy for. Thoughts from both the therapist and psychologist are that he will catch back up in this area as well and will continue a "normal" life in regular school. For now he still qualifies with his speech to continue in his Early Intervention Program. He remains there until he turns three, then will move into an integrated preschool where there are children like him along with other peer models. Once there he will continue to work on speech and prepare for main-streamed kindergarten.

As far as further resources go, Dr. Roth is changing his diagnoses to "possible PDD", Pervasive Developmental Disorder, showing that he is still being monitored because of his history with Autism. However, she also told us that she hesitates even putting the "possible PDD" label in his chart because she believe he doesn't have it, but this way resources will still be available to him throughout the following year and he can keep benefiting from them. We are to meet with Dr. Roth again in a year for a final analysis just to make sure no new issues have appeared.

I am so happy for my boy! Thank you friends, family, teachers, doctors, therapists and strangers for your efforts in Ashton's behalf! It definitely takes a village to raise a child...and a informed world to reverse Autism!


Autism Speaks. It's time to Listen.

17 July 2008

My Sweet Boy



It is no new news that Ashton lights up any room he enters! I am still so proud of my little man...but quite possible more so now than ever before!

First of all, Bink broke. "Uh-Oh", Ashton will say each and every time he sees it, or is asked about it. I thought, that with his most prized possession no longer in working condition, that he'd have a rough go for a while...or at least until I gave in, but he surprised me. The picture is a timeless shot of Ashton with his Bink and Blank glued to him, while riding the Big-Wheel...classic!

Secondly, and the purpose for this post, is that we met with Ashton's neurodevelopmental team of doctors up at the Child Development Clinic this week. He greeted them with a wave and a enthusiastic "Hi!" before darting down through the halls with all of us, yes including the doctors, chasing after him! He finally stopped to play with his Physical Therapist, who had a ball to interact with him to start his analysis.

After about an hour of interaction with the doctors and discussion about his different areas of strength and weakness, the doctors explained Ashton and his progress like this... His gross and fine motor skills are all there and being practiced, however there is a mild delay over-all. He was rated at a 24-27 months age equivalency in that area...he is 31 months now. The doctor that worked with him in motor skills explained that he sees Ashton making the progress that should be there and sees him progressing just fine and eventually being right on track, however, for example he'd like to see him at this age jump higher, further and be more stable. His fine motor development is similar, just a few hairs short. He didn't want to show any discouragement, he was actually VERY impressed with his progress from the last time we met with him a year ago. So to that he said, just keep on doing what we're doing and those areas will catch up and fall into place. No concern at all. Yay!

His strengths were noted as being very social, tries to verbalize, and has supportive Early Intervention services that has helped him leaps and bounds. They were so impressed with his social that they wonder how his appointment with psychology next month will go...meaning they wouldn't be surprised if he's re-evaluated as not having Autism...and even less on the spectrum! Yay!

One area of concern is language delay. He is receiving some help from the Early Intervention program that he goes to twice a week, but they felt after watching him, and me expressing my concerns, that additional individualized speech and language therapy would be helpful. I explained Ashton as being a little bi-polar...no offense intended to anyone...because he is completely ecstatic about how life's treating him one moment and completely loosing it, hitting his head on the wall or floor and screaming/crying, the next. Only one or the other, happy or enraged. He did not display his angry side at his appointment, but after talking with the neurodevelopmental pediatrician about it we all felt that this is most likely due to the inability to communicate his wants or needs...or his ability to understand others at times. So off to additional therapy we go. I've contemplated this for a while now and to have the doctors confirm it was a good step.

As I talked with the pediatrician about Ashton's delays over the past 2 years, we both agreed and wonder if it is true that his delays may have started following his traumatic episode at 4 months old. That incident could have stunted his progress, only for a time, and now he's starting to catch back up. Dr Winter agreed that that could very well be. They have discussions there amongst the doctors about the fairness of diagnosing a young child with a label like Autism, Aspergers or PDD, and why it shouldn't just be noted as delays? They feel that in most circumstances it is beneficial to have some kind of diagnosis to be able to get the help needed...like through schooling and therapies, and we have learned that this is true. They mentioned Ashton is so good off right now, in fact, that they could move him on out of their clinic...but are leaving the mild delay diagnosis as it stands in case there is need for any other services along the way. Thank you Terry and Dr. Winter!

The doctor's all agreed and said Ashton was a delight, and a bit of fresh air that they don't regularly see up there. They thought he was so polite saying hi and good-bye, and were entertained by him... Most people that know Ashton seem to feel the same way, and he portrayed that in a one hour appointment! Great job Ashy!

Their other recommendations for Ashton were to continue through early intervention, other follow-ups as needed, and the re-evaluation of psychology to see where his diagnosis now stands. That appointment for all who are interested in knowing is on August 27th @ 10:30am.

A special thanks, and luvs, to all those who are active in Ashton's welfare. He has benefited from all those that spend time in his behalf and support him. Ashton has many followers that want to see him fully recovered and continuously progressing each day! We all love you Ashy! You are the twinkle in my eye!

12 July 2008

Discovery Gateway



As close to Life Flight as we ever what to be...ever again





04 July 2008

Snap!

What child doesn't love creating noise? For the July holidays I purchased 6 boxes of "snaps". I took one outside with Ashton to try it out... 4 boxes later we decided to save some for later. Ashton was sick, so this particular activity was a fun treat for him!